Tuesday, September 16, 2008
Aftermath of (Hurricane) Ike...
Thursday, August 14, 2008
Our newest granddaughter...
My sister, Karen was able to meet her and hold her before I was! :-) Danya made a trip to Southern California about a week ago! The best thing about it was I got LOTS of pictures since Karen likes to take pictures even more than I do! :-)
Unfortunately, this week a blood test was positive for Down syndrome. A nurse at the hospital noticed a crease in Danya's hand that is sometimes a "sign" of DS. There are so many obstacles to face in life as it is, that this is just one more stumbling block for her. I
know how heavy my heart has been since we received this news and I can't even imagine what her parents must feel.What is Down syndrome? Down syndrome is a chromosomal disorder that includes a combination of birth defects. Affected individuals have some degree of mental retardation, characteristic facial features and, often, heart defects and other health problems. The severity of these problems varies greatly among affected individuals.
How common is Down syndrome? Down syndrome is one of the most common genetic birth defects, affecting about 1 in 800 babies.
What causes Down syndrome? Down syndrome is caused by extra genetic material from chromosome 21. Chromosomes are the structures in cells that contain the genes. Each person normally has 23 pairs of chromosomes, or 46 in all. An individual inherits one chromosome per pair from the mother's egg and one from the father's sperm. When an egg and sperm cell join together, they normally form a fertilized egg with 46 chromosomes. Sometimes something goes wrong before fertilization. A developing egg or sperm cell may divide incorrectly, sometimes resulting in an egg or sperm cell with an extra chromosome number 21. When this cell joins with a normal egg or sperm cell, the resulting embryo has 47 chromosomes instead of 46. Down syndrome also is called trisomy 21 because affected
individuals have three number 21 chromosomes, instead of two. This type of error in cell division causes about 95 percent of the cases of Down syndrome.The symptoms of Down syndrome can vary widely from child to child. While some kids with DS need a lot of medical attention, others lead very healthy and independent lives. Down syndrome affects kids' cognitive abilities in different ways, but most have mild to moderate mental retardation. Kids with DS can and do learn, and are capable of developing skills throughout their lives. They simply reach goals at a different pace - which is why it's important not to compare a child with DS with typically developing siblings or even other children with the condition. Kids with DS have a wide range of abilities, and there's no way to tell at birth what they will be capable of as they grow up.
Myth: People with Down syndrome are severely retarded.
Truth: Most people with Down syndrome have IQs that fall in the mild to moderate range
of retardation. Children with Down syndrome are definitely educable and educators and researchers are still discovering the full educational potential of people with Down syndrome.Myth: Most people with Down syndrome are institutionalized.
Truth: Today people with Down syndrome live at home with their families and are active participants in the educational, vocational, social and recreational activities of the community. They are integrated into the regular education system, and take part in sports, camping, music, art programs and all the other activities of their communities. In addition, they are socializing with people with and without disabilities, and as adults are obtaining employment and living in group homes and other independent housing arrangements.
Myth: Adults with Down syndrome are unemployable.
Truth: Businesses are seeking young adults with Down syndrome for a variety of positions. They are being employed in small and medium sized offices: by banks, corporations, nursing homes, hotels and restaurants. They work in the music and entertainment industry, in clerical positions and in the computer industry. People with Down syndrome bring to their jobs enthusiasm, reliability and dedication.
Myth: Adults with Down syndrome are unable to form close interpersonal relationships leading to marriage.
Truth: People with Down syndrome date, socialize and form ongoing relationships. Some are beginning to marry. Women with Down syndrome can and do have children, but there is a 50 percent chance that their child will have Down syndrome. Men with Down syndrome are believed to be sterile, with only one documented instance of a male with Down syndrome who has fathered a child.
Danya's mom, Christine has said it best "Down Syndrome is just a label and doesn't reflect who she is or who she will become".
With lots of love and support from her mom, dad and all of her family, Danya is sure to thrive! It doesn't matter...she's still a beautiful baby if I say so myself!
And the build goes on...
The outside of the house is just about done. The driveway and the rest of the sidewalks have to be poured, but now our septic is complete and once the house is "finished", it's
As with everything, there seems to be a silver lining...with us, it's the view! We now have an awesome view of the lake! Too bad the water level has gone down to a "normal" level! We loved it when it was so high, but that's o.k. we will still enjoy our view! :-) BTW there is plywood covering the deck to try to protect it...from everything!
Another visit from friends...
While we were riding around the lake we spotted these kids at the "cliffs" jumping off! I've included two of the ways "up"! Seems like they work awfully hard at getting up only to spend seconds getting down!
Sometime I'll have to blog about the first time we met Jerri & Lloyd in Oregon at the Monaco factory! It's pretty funny! We've had lots of good times since then and always enjoy getting together with them! They are a fun couple to be with!
Wednesday, July 16, 2008
Ostrander's Return!
Ben had never been out on a lake with a ski/speed boat and he'd never been knee boarding. He'd also never swam in the middle of a lake before! :-) At first he was more than a little leery, but by the end of the day he was having a
We had lots of fun swimming in the lake, even getting Dave in there for a brief respite from the heat (well, I won't say what the REAL reason was)! After spending the day on the water...it was a beautiful day with great water...we put the boat
Happy Birthday, Marie!
Tuesday, July 15, 2008
Shae...
Shae and I have always shared a special bond. He stayed with us for a month when he was just a year old while both his parents were off with thier respective jobs. He took his first steps with us! :-) When his mom was stationed in Okinawa, Japan it was me that picked him up in Dover and flew with him to Okinawa for the summer. We have so many
Shae must have grown 2 feet in the last two years! He's always been very tall for his age...I can remember people commenting about how much older he looked when he was still little! The bad thing about that (when he was younger) he would act his age and people thought he should be acting older! He has the sweetest personality and is just an awesome young man! Shae has always loved the water and we have done a lot of "water" things since he's been here! We've taught him to ski, wake board, and knee board. He really wanted to wake board so we borrowed a wake board. The first day we never could get his foot in the
We've played a few games, watched a few movies (when we were in Japan...Shae and I must have watched "Top Gun" a 1,000 times...we've watched in twice this time) and spent lots of time in the water!
He's only here for 12 days so we are trying to enjoy each and every day!!
Thursday, July 10, 2008
Sweetpea...what happened?
Today ended up to be a terrible day. It was a day of shock and sadness. I'm still not sure what happened It all started out with a phone call from my mom about her cat, Sweetpea. My mom and I got both of our cats (Sweetpea and Furby) in early March, they were 7 and 8 months old. When my mom called she asked me if I thought it was possible for a cats legs to go to sleep. Sweetpea's legs had been "twitching" since she had jumped out of the bathroom sink a few minutes earlier and she was meowing. For some reason, cats like to lay in the sink. I think it's because it's cool. The only problem, our cats are rather large even though they are young. My mom thought that since Sweetpea might have been cramped in the sink, that might be the reason. I told her that I thought it might be possible, but to watch her and let me know if anything changed. About 5-10 minutes later she called again to tell me that now Sweetpea wasn't using her back legs. I had her call the vet and he agreed to meet us at his office (it was after hours).
I picked them both up and we headed to the vet. Sweetpea was meowing but I figured she was upset because (1) she was in her carrier and (2) we were going in the car. It was a few miles down the road and I thought I heard her vomit. Again, I figured it was because she was so upset...she had been meowing the whole time. I heard her do that several times, with the last time just minutes before we got to the vets. Once we got there, I opened the carrier to see if she was covered in vomit. When I looked at her, I knew she wasn't breathing. I told my mom, "I think she's gone" and she asked me what I meant. I said "I think she's gone". Just then Dr. Sartain arrived and we went inside. I told him that I didn't think she was breathing and he verified it. My mom and I stared at each other in shock. How could this have happened? What caused it? The doctor asked if she could have gotten to a plant but my mom doesn't have any inside. Then he asked if she had been outside at all (thinking that possibly she had gotten bitten by a poisonous snake) but we told him that she was strictly an indoor cat and had never been outside. He did mention a blot clot, said he'd been thinking about it as he was driving over, but he felt that the sudden onset of her symptoms pointed more to poisoning of some kind. We left there not knowing exactly what happened except that Sweetpea was gone and we were leaving without her.
Once we got back to my mom's I looked around for anything that Sweetpea could have gotten into, even checking to see if there was anything wet on the floor that might have spilled and she could have gotten into. There was nothing there. I didn't see any signs of anything that she had eaten. I didn't find anything wet or dry. There was nothing open on the counters or the floor. When I got back to the motorhome I did some quick research on the internet and I personally think she might have had Cardiomyopathy. It's a heart disease that cats can have. Unfortunately, Ragdolls are sometimes more prone to it than others. There are more symptoms that Sweetpea didn't have, but the major one, the weakness in her back legs, is often one of the most critical...and the most likely to cause sudden death.
Since Sweetpea and Furby are related (by their grandfather), I'm thinking I'd like to have him tested to make sure this doesn't happen to him. Even though we haven't had them for years, they quickly capture a place in your heart and become members of your family. I know that my mom will miss Sweetpea! Every time I went to my mom's, Sweetpea was the first to greet me at the door and always expected me to pet her and play with her! She will be greatly missed.
Monday, June 30, 2008
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